Australian influencer Erin Oudshoorn has revealed heartbreaking news involving her six-year-old daughter, announcing that she has sadly passed away.
Her daughter Lulu suffered from a rare form of epilepsy known as West syndrome that has affected her since she was a baby. Oudshoorn paid tribute to her young daughter and confirmed that she had died surrounded by her family earlier this week.
Influencer Erin Oudshoorn Shares Emotional Message About Her Daughter Lulu
Oudshoorn became famous in her native Australia and around the world when she began to share the story of her daughter Lulu. Aiming to raise awareness of West syndrome and how it affects families, Oudshoorn has chronicled their lives on social media.
Unfortunately, her latest Instagram post confirms that Lulu passed away this week.
“It is with the most painful, shattered heart to share that our darling Lulu passed away peacefully in our arms yesterday, surrounded and profoundly loved on by all of her extended family,” Oudshoorn wrote.
She continued, “Dave and I are just utterly broken. There simply aren’t enough words to express our agony. Our baby girl is gone.”
Lulu Had a Rare Form of Epilepsy
Lulu was diagnosed with West syndrome, which is also known as infantile epileptic spasms syndrome, when she was just 11 months old. This led to the youngster experiencing regular spasms and seizures all throughout her life, with the condition currently being incurable.
Oudshoorn previously shared how Lulu was diagnosed with West syndrome, also called infantile epileptic spasms syndrome, when she was just 11 months old. West syndrome is a form of epilepsy that develops in babies under two years old. Doctors told Oudshoorn that Lulu’s condition was incurable, and said they did not believe her brain had formed properly in utero.
“Lulu suffers from a very rare and catastrophic form of epilepsy,” she said during an appearance on the “Mummy Village” podcast. “The seizures are brutal, to be honest. She was diagnosed very young, at 11 months of age.”
She added, “I didn’t really know anything about epilepsy. I assumed that we would find seizure freedom and seizure relief with medication. Unfortunately, Lulu has tried and tested about 15, and [nothing worked]. The doctors also can’t find a cause for her epilepsy, so she’s left seizing all day every day and it is absolutely barbaric to watch.”
